Hearts & Minds - Information for ChangeSM

Services, Support, and Information for the Physically Challenged

Notes: We will continue to update and add more listings.
     Groups listed below are for information only. Hearts and Minds does not endorse or have an affiliation with them.  Additional notes and copyright info. Not all groups listed run self-help fellowship groups. If they do not, they can probably refer you.


American Amputee Foundation, Inc. (AAF)
PO Box 250218,
Little Rock, AR 72225
Phone: 1-501-666-2523
       Book Information, referrals, and peer support for amputees. Hospital visitation and counseling. Contains a magazine, group development guidelines, and national resource directory for patients, families and caregivers.

Amputee Coalition of America (ACA)
900 East Hill Ave. Suite 285
Knoxville, TN 37915
1-865-524-8772 or 1-888-AMP-KNOW (1-888-267-5669)
E-mail: [email protected]
       "The Amputee Coalition of America (ACA) is a national, non-profit amputee consumer educational organization representing people who have experienced amputation or are born with limb differences. The ACA includes individual amputees, amputee education and support groups, professionals, family members and friends, agencies, and organizations."

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Amputee Resource Foundation of America
6480 Wayzata Blvd.
Golden Valley, MN 55426
E-mail: [email protected]
       "It is our mission to disseminate timely and useful information, to perform charitable services, and to conduct research to enhance productivity and quality of life of amputees in America."

MossRehab ResourceNet
MossRehab Hospital
1200 West Tabor Road
Philadelphia, PA 19141
Phone: 1-800-CALL MOSS
E-mail: [email protected]
       "MossRehab, a modern, 152-bed facility, offers comprehensive care to people with a broad range of conditions--including stroke, brain injury, orthopedic and musculoskeletal disabilities, spinal cord dysfunction, pulmonary disorders, amputations, and other forms of disability."

National Amputation Foundation, Inc.
38-40 Church Street
Malverne, NY 11565
Phone: 1-516-887-3600
[email protected]
The National Amputation Foundation (NAF) was founded in 1919 to serve the needs of veteran and civilian amputees. Services include the exchange of visits among amputees, legal counsel, vocational guidance and placement, social activities, psychological aid, and distribution of educational materials."

Caretakers' Respite

National Respite Locator Service
800 Eastowne Drive, Suite 105
Chapel Hill, NC  27514
Phone: 1-800-7-RELIEF or 1-800-773-5433)
[email protected]
Website: www.chtop.com/locator.htm
       The National Respite Locator Service "helps parents, caregivers, and professionals find respite services in their state and local area. The service is also useful when a family travels or must move to another state."
       This site can help parents, caregivers, and professionals find respite services in their state and local areas. Has links to all 50 states in the USA.

Facial Disfigurement

Rickie Anderson
Executive Director 
PO Box 458 
Crystal Lake, IL 60014
Phone: 1-888-486-1209
[email protected]om
       About Face is "an international organization dedicated to providing information, emotional support, and educational programs to individuals who have a facial disfigurement and to their families."
       This site contains a newsletter, information and referrals, and assistance in starting local groups. Also an address in Canada.

Center for Cranio facial Development and Disorders 
Children's Medical and Surgical Center, Room 1004
The Johns Hopkins Hospital
600 North Wolfe Street
Baltimore, MD 21287
Phone: 1-410-614-9245
E-mail: [email protected]
Website: omie.med.jhmi.edu/craniofacial/
       "The Center for Craniofacial Development and Disorders is an educational and interactive resource for families, physicians, and researchers facing craniofacial developmental issues and to inform the public about activities at our Center."

Children's Craniofacial Association
PO Box 280297
Dallas, TX  75228
Phone: 1-972-994 9902 or 1-800-535-3643
[email protected]
Website: masterlink.com/children/
       Children's Craniofacial Association is "a nonprofit organization ... dedicated to improving the quality of life for facially disfigured individuals and their families. Nationally and internationally, CCA addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions. CCA advocates on behalf of and promotes awareness for the facially disfigured."
       This site contains information on craniofacial disorders in children as well as educational materials and doctor referrals.

FACES: The National Association for the Craniofacially Handicapped
PO Box 11082
Chattanooga, TN 37401
1-800-3 FACES 3 or 1-800-332-2373
[email protected]
       FACES is "a non-profit organization serving children and adults throughout the United States with severe craniofacial deformities resulting from birth defects, injuries, or disease. ... Our service goals address three distinct areas: client travel, public awareness and understanding, and information and support."
       This site contains a newsletter and referrals to group and treatment centers.

Forward Face
317 East 34th Street,
New York, NY 10016
Phone: 1-800-FWD-FACE or 1-212-684-5860
[email protected]
       "Forward Face is a national organization for patients and families with craniofacial conditions."       

Let's Face It
PO 29972
Bellingham, WA 98228-1972
Phone: 1-360-676-7325
[email protected]
        "Lets Face It is a nonprofit network that links people with facial disfigurement and all who care for them to resources that can change their lives."
       The site contains a resource list.

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http://www.heartsandminds.org/self/links/physlinks.htm - latest text changes April 28, 2006.

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