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Parkinson's Disease, Prosthetics, and Technology links

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National Parkinson's Foundation, Inc. (NPF)
Bob Hope Parkinson Research Center
1501 NW 9th Avenue
Bob Hope Road
Miami, Florida  33136-1494
Phone: 1-305-547-6666 or 1-800-327-4545
E-mail: [email protected]
       "The National Parkinson's Foundation works to improve the quality of life for both patients and their caregivers. It [works] to find cause and cure for Parkinson's disease and related neuro-degenerative disorders through research... Educates general medical practitioners to detect the early warning signs of Parkinson's disease... Educates patients, caregivers, and the general public... Provides diagnostic and therapeutic services..." The NPF
has offices nationwide.

     "Parkinsonís disease is the second most common neurodegenerative disease after Alzheimerís, affecting about one million people in the United States and an estimated four million worldwide. The prevalence of the disease is expected to increase substantially in the next 20 years due to the aging of the population in the U.S., Europe and globally, as well as an increase in the age-related incidence of the disease. The economic burden of Parkinsonís disease is estimated to be $6 billion annually in the U.S.

     "Since its inception more than 50 years ago, the National Parkinson Foundation has worked to address the unmet needs in Parkinson's care and treatment. In 2011 and beyond, NPF works every day to improve the quality of Parkinson's care through research, education and outreach. We believe by working together, we can improve the quality of care for every person diagnosed with Parkinson's disease."

     The NPF website has information on how to help and information about Parkinson's disease along with the latest news and events. The site also has a variety of tests that should be helpful to those who think they may have symptoms of the disease.
     This website helps people with the basic understanding of the disease, and it was very easy to navigate. JMH
     It was useful reading through the information that the website stated and it allows people to learn about the disease. JS



Parkinson's Disease Foundation, Inc.
William Black Medical Building
Columbia-Presbyterian Medical Center
710 West 168th Street
New York, NY 10032
Phone: 212-923-4700 or 1-800-457-6676
E-mail: [email protected]
       "The Parkinson's Disease Foundation is a national, non-profit organization, dedicated to supporting and promoting the highest-quality research world-wide into the cause(s) and cure of Parkinson's disease, and for better symptomatic treatments. It also offers referrals to support groups, clinical neurologists specializing in the diagnosis and treatment of PD symptoms, and to a wide variety of non-profit and for-profit resources available to PWPs and their families nation-wide."

       "The Parkinsonís Disease Foundation (PDF) is a leading national presence in Parkinsonís disease research, education and public advocacy. We are working for the nearly one million people in the US who live with Parkinsonís by funding promising scientific research while supporting people living with Parkinsonís through educational programs and services. Since its founding in 1957, PDF has dedicated over $90 million to fund the work of leading scientists throughout the world and over $37 million to support national education and advocacy programs."
     This site provides plenty of information about Parkinson's disease and the organization. The captioned links are helpful.
     I agree. JMH
     This statement is completely valid. JS

Parkinson's Care
710 West 168th Street, Third Floor
New York, NY 10032
E-mail: [email protected]

       "The goal of the program on Quality, Access and Delivery of Parkinson's Care is to improve the quality of  life of  persons with Parkinson's Disease (PWP) by improving the availability of effective treatments and supportive services to patients and families."
       The Parkinson's Care site has a site contents section that allows for easy navigation. The site has an overview of what the organization intends to do and useful links.
       This website makes the organization very appealing and welcoming. The links were very helpful and included lots of good detail. JMH
       This website was very useful and had plenty of information for people to have an understanding of the disease. JS



Institute of Biomedical Engineering
University of New Brunswick
PO BOX 4400
25 Dineen Drive
Fredericton NB E3B 5A3
Information contact: Robert Caldwell, Manager
[email protected]
Website: www.unb.ca/biomed/
       "The Institute of Biomedical Engineering provides services to people with upper extremity limb loss for more than 14 years. Due to its link with research and development in myo-electric controls, this service has grown to be the second largest in Canada providing powered prostheses. In 1995, research expanded to offer a program for selected individuals with lower extremity limb loss."

       "The Institute of Biomedical Engineering (IBME) is a research institute within the University of New Brunswick. Founded in 1965 as the "Bio-Engineering Institute", the Institute has evolved to become a world renowned, multi-disciplinary research unit involved in a broad spectrum of activities in biomedical engineering. The Institute's mandate is to further education, research and community service in biomedical engineering."

       This site has a wealth of information right on the homepage. JMH
       Many people can become aware of the disease and learn more than they knew. JS

Prosthetics Outreach Foundation (POF)
400 East Pine Street, Suite 325
Seattle, WA 98122-2300 / U.S.A.

Phone: 1-206-726-1636
E-mail: [email protected]
       "The Prosthetics Outreach Foundation is a nonprofit medical service organization that provides high quality prostheses (artificial limbs) to amputees in urgent need in developing countries and in the United States."

       "POF seeks to ensure that children and adults with limb loss or limb deformities in developing countries have access to high-quality orthopedic and physical rehabilitation services, so that they can enjoy lifelong mobility. To this end, we work to strengthen the local capacity of developing countries to provide prosthetic care, orthopedic surgeries and the treatment of children with clubfoot through hands-on teaching and training. This includes assisting developing countries with the in-country fabrication of prosthetic and orthotic components (artificial feet, knee joints, shoe braces, etc.) to break dependence on costly component imports. At present, POF has programs in Vietnam, Bangladesh, Sierra Leone, Liberia and Haiti."

       The POF website provides information on the organization and how to donate. The site also contains a photo gallery and related links.
       I believe the photo gallery really contributes and helps to spread knowledge. JMH
       I agree with Jenna because it is true that the photo gallery helps to show more. JS


8630 Fenton Street, Suite 930
Silver Spring, MD 20910
Phone: 1-800-227-0216
[email protected]
       "Abledata is a federally funded project, the primary mission of which is to provide information on assistive technology and rehabilitation equipment available from domestic and international sources to consumers, organizations, professionals, and caregivers within the United States."

       "AbleData's most significant resource is the AbleData database of assistive technology, which contains objective information on almost 40,000 assistive products. For each product, we provide a detailed description of the product's functions and features, price information (when available), and contact information for the product's manufacturer and/or distributors. We also offer information on non-commercial prototypes, customized and one-of-a-kind products, and do-it-yourself designs. To select products most appropriate to your needs, we suggest combining information provided by AbleData with professional advice, product evaluations, and hands-on product trials."

       The Abledata website offers resources in forms of literature and articles. This site also has related links.

Adapted Computer Technologies (ACT)
14 Lynn Court
San Rafael, CA 94901
[email protected]
Website: www.compuaccess.com
       "ACT specializes in systems integration and training in computer assisted devices for all individuals with disabilities, rehabilitation/vocational counselors, and employers of persons with disabilities."
       The ACT website contains info about helping to educate those with disabilities.
        I agree!!! JMH
       This website helps people learn about others and shares a lot of information. JS

New York State Office of Advocate for Persons with Disabilities
One Empire State Plaza, Suite 1001
Albany, New York  12223-1150
Phone: 1-
518-473-4538 (voice only)
518-473-4231 (TTYonly)
800-522-4369 (Voice/TTY/Spanish-- NY state-only)
800-943-2323 (BBS-NY state-only)
[email protected]
Website: www.advoc4disabled.state.ny.us/
       "The OAPwD works to ensure that people with disabilities have every opportunity to be productive and participating citizens through full access to emerging technology. It [provides] up-to-date, comprehensive information on programs and services for people with disabilities and their families. It also [works for] implementation of progressive legislation protecting the equal rights of people with disabilities...."

*As of 7/18/2011 this website is currently unavailable.       
This is a text-based site with information from publications.

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